We are home again. It's been a week since Sophie's surgery and so far we've seen no seizures. This has been the ultimate goal so we're hoping it lasts! She's still on all the same medication and will be for several months before they try to wean her off of some or all of them. I'll find out more about that at her neurologist follow up on Tuesday. She's recovering well...still a little off with eating and sleeping, but improving each day. The most frustrating thing she's doing is that her naps rarely last longer than 45 minutes (on the dot!) but as a mom of three I know that this frustration is a normal baby thing and has nothing to do with all the medical struggles we've been through! While Kayla and Madelyn were better nappers at this age, they both went through phases of this at other ages. I am trying to get Sophie on a more regular routine with eating and sleeping, but with her it seems a little harder since we are on the go more and she just isn't as consistent with things. She is still recovering though and I have to remember that. Overall, she is pretty much back to her usual self and is such a sweet, calm baby. It's hard to believe she is already 3 months old and at the same time it seems like we've been doing all this for so much longer!
Kayla was back in school this week and we had some extra time with just her since Madelyn has been with Mike's parents all week. We decided to leave her there for awhile longer so we could ease ourselves into life back at home while Sophie is recovering. It's been so quiet around here without her! She'll be back today and our whole family will be at home once again. We're hoping that the coming months will be much calmer than the past three months now that the surgery is behind us. There are still no guarantees regarding seizures, but we are hopeful. God has led us this far on our path with Sophie and we have full confidence that He will continue to show us the way. It may not be the path we would like, but it is His perfect plan for her and us that we must trust. I have struggled with this all along, but remain steadfast in my faith. It hasn't been easy, but it certainly would be harder without relying on Him to hold us up during difficult times.
I am doing better. The anxiety medicine has helped a lot and the changes we've made to our daily routine around the house has made life much easier for all of us. I look forward to being at home long-term without the looming of a stay at Children's in the future. With the holidays approaching we are very thankful for so many blessings in our lives, especially all the family and friends that have been praying for us and supporting us. We can't thank you all enough.
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