Sophie is out of surgery and resting comfortably in the PICU until tomorrow. The surgery went well and the surgeon was able to remove the tuber that seemed to be causing the seizures and some surrounding tissue. Once it was removed they didn't see any more abnormal activity in that area. We are hopeful that she won't be having seizures as a result, but that will take time to find out. They have her on two additional seizure medications for the next several days just to make sure things in her brain are calm while she's healing. We were able to see her and she was moving around and pretty fussy. They are giving her Tylenol for pain and will also give her a small amount of Morphine if it seems necessary. Tomorrow she will have a ct scan to make sure there isn't any hemorraging or any other issues and if all looks good she'll be moved from the PICU to a regular room. The surgeon thinks that she could be discharged as early as Monday, but we'll see.
I've been strangely calm today. I kept telling Mike how I just didn't feel anything...nervous, scared, emotional...nothing. He said that's what it's like to be calm and I agreed that he was right. We had full confidence in her doctors, especially her neurosurgeon who we have the utmost respect for. He has been an amazing resource and support during this difficult process. We spent some time with her and are now back at Mike's parents house to rest. It's been a long day getting up at 4am and a lot of waiting. I'll call for updates tonight and we'll go back tomorrow morning to spend the day with her. She needs her rest and so do we. I'm still trying to get over this cold I have. Hopefully I'll be feeling better tomorrow.
Thank you for your prayers and ongoing support. God continues to guide us through this time and we are so grateful for the people He has put in our lives to love and support our family.
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