A New Chapter-8/16/10

This will be brief for now...I'll add more tonight.  Sophie had multiple seizures overnight and was transferred to Children's Hospital in DC early this afternoon.  We are on to Plan C which is starting evaluation for possible surgery to remove some of the tumors, if they can narrow it down to one or two that is causing the seizures.  She'll be there for 1-2 weeks and monitored by 24 hour video EEG to track her seizure activity.  We both believe that this is the right path for her to be on since many medications have failed so far.  It will be logistically different for us and we'll be figuring all that out over the next couple days when Mike and the girls head home.  When I know what we need help-wise I will start letting people know.  Please continue to pray for all of us as we enter this new chapter of caring for Sophie.

...We just got back from visiting Sophie at Children's.  It is a really nice place, but overwhelming in that we don't know the doctors, how to get around in the hospital, etc.  It's going to take some time to get used to a new routine there.  What we do know is that I'll only go once a day for several hours b/c getting in and out of DC is a lot harder than going to Fairfax (which I have been doing twice a day) to see her.  Tomorrow the neurologist will see Sophie and we hope to get some answers as to what happens next in this process.  Will keep everyone posted as we get more information.  Please pray that our family has smooth transitions over the next week in getting used to a new hospital, a new routine for me once Mike and the girls go home, and for Kayla starting kindergarten next week amidst all of this going on.