Sophie Update 8/8/10

Not all that much to say. Sophie went for 36 hours without a seizure then had a small one at 3am this morning. This afternoon she had three in a row while I was there and one of them was longer than usual. The doctor has started her on another medication so now she is on three different ones. So we start over in observing for 48 hours. Hoping to talk to the neurologist tomorrow to see how realistic it is to get her completely seizure-free since her condition will never be cured by medication, just maintained. We've stopped thinking about potential dates for her discharge b/c it just becomes disappointing when things change the day before we think she might come home. Taking it one day at a time, sometimes even shorter increments than that. Please keep praying for her. We just want to get our whole family back home, but know we have to do what is best for Sophie and for now this is what she needs. Take care.