It's been a hard day. Once again we were looking at being discharged (tomorrow) but Sophie had several prolonged seizures last night which changed everything. Found out today it is not common that seizures in a newborn are this hard to control, but the doctors remain aggressive in finding the right combination of medication to get her to a point that they are comfortable sending her home. They are going to re-evaluate her medication and come up with a new plan that they will meet with us tomorrow morning to discuss. To say that we are overwhelmed with information, names/changes of medications, etc. is an understatement. The timeframe we are looking at now is at least 6 more days in the NICU since one of the new medications needs to be given in a loading dose that will take that long to complete. Mike and the girls will most likely go back home early next week and I will stay up here to be near Sophie. Kayla starts kindergarten on Aug 23rd and we want both girls to have a week at home before that adjustment begins. I have promised her that I will be there for her orientation and when she gets on that bus on her first day! :) Some things a Mommy just can't miss.
Please keep praying for all of us. The next several weeks will be quite an adjustment with both girls starting school (Kayla-Aug 23, Madelyn-Sept 7) and I know somehow it will all come together. I keep being reminded that God will not give us more than we can handle. Some days lately I question that, but each time I am eventually granted a sense of peace that keeps me going. There is a purpose for all this that remains to be seen. We are so grateful for all the love and support.
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